About us

Action Duchenne exists to support, empower and equip every DMD community in their journey from diagnosis and beyond. Our mission is to support every child, young person, adult, and family throughout their Duchenne journey, celebrating their strength and resilience.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. 

Founded by families affected by Duchenne, over half our trustees, team, and volunteers have personal experience with this condition. We understand the importance of support from diagnosis through all stages of life.